Meeting information
Update: This event has been postponed
The GDI/B1MGplus Stakeholder Forum, originally scheduled for 17 September 2026, has been postponed. A new date will be announced here once confirmed. We apologise for any inconvenience.
Aim of the meeting
The GDI/B1MGplus Stakeholder Forum 2026 will introduce the European Digital Infrastructure Consortium for genomic data (Genome EDIC), the proposed long-term governance framework for cross-border genomic data access in Europe.
The forum includes an introduction to the Genome EDIC, a panel discussion on the reuse of genomic and health data and an opportunity for stakeholders’ input.
This forum will focus towards several key questions on Genome EDIC, including:
- Who will benefit?
- Who makes the decisions?
- What would it take for citizens and patients to genuinely trust this infrastructure?
Outcomes of the meeting
By the end of the forum, stakeholders will:
- Have a better understanding of Genome EDIC
- Hear directly from patient and citizen perspectives
- Discuss concerns of Genome EDIC, such as individual rights and trust, and the collective value of shared genomic data
- Be equipped to actively participate in, scrutinise, or challenge the Genome EDIC as it develops
Contact
For queries about the event please email: gdi-coordination@elixir-europe.org
Posted: 5 August 2026
